{"id":2286,"date":"2017-06-30T00:00:00","date_gmt":"2017-06-30T00:00:00","guid":{"rendered":"http:\/\/www.pharma-mkting.comindex.php\/2017\/06\/30\/pinup063017\/"},"modified":"2019-02-06T02:14:44","modified_gmt":"2019-02-06T02:14:44","slug":"pinup063017","status":"publish","type":"post","link":"http:\/\/ec2-54-175-84-28.compute-1.amazonaws.com\/pharma-mkting.com\/articles\/news\/pinup063017\/","title":{"rendered":"PinUp: A Pharma-Patient Advocacy Kickback Scheme &amp; Other Phama-Centric Uses of Patients, more&#8230;"},"content":{"rendered":"<p><b>Pharma Industry News Update<\/b>: 30 June 2017 <\/p>\n<hr\/>\n<p>        Pharma Funded Charity Draws IRS Probe<br \/>Donations Come Right Back to Donors<\/p>\n<p>                        <img decoding=\"async\" vspace=\"0\" border=\"0\" hspace=\"0\" style=\"display: block; height: auto !important;\" width=\"500\" src=\"http:\/\/ec2-54-175-84-28.compute-1.amazonaws.com\/pharma-mkting.com\/wp-content\/uploads\/2017\/06\/IRS-v-CDF.jpg\"\/>             <\/p>\n<p>[From www.bloomberg.com] The agency is exploring whether the Chronic Disease Fund, a patient-assistance charity funded largely by drugmakers, gave &#8220;impermissible&#8221; benefits to its corporate donors, according to federal court filings. An IRS analysis found that 95 percent of the $129.3 million the charity spent on co-payment support in its public programs in 2011 went to patients taking drugs made by the very companies that had donated the money, according to court papers.<\/p>\n<p>The IRS probe adds to the growing scrutiny of charities that help poor patients pay for expensive drugs. As prices have soared, pharmaceutical companies&#8217; contributions to patient-assistance charities have sparked accusations that the donations are, in effect, a profitable form of marketing subsidized by U.S. taxpayers. The seven biggest co-pay charities, which cover scores of diseases, reported combined contributions of $1.1 billion in 2014 &#8212; more than double their 2010 figures.<\/p>\n<p>In 19 of 24 disease-specific funds managed by the Chronic Disease Fund that received drug company funding in 2011, 90 percent of the spending ended up going to patients taking the primary donor companies&#8217; drugs, according to an analysis by an IRS agent contained in court filings. The vast majority of the funds had just a single corporate donor, according to the IRS analysis.<\/p>\n<p><a href=\"http:\/\/sco.lt\/7DXc6D\">More here&#8230;<\/a><\/p>\n<p><b>Further Reading:<\/p>\n<ul>\n<li><a href=\"http:\/\/sco.lt\/4tqlbF\" rel=\"nofollow\">How a #pharma Funded &#8220;Grassroots&#8221; Patient Advocacy Campaign Changed FDA&#8217;s Approval Process<\/a><\/li>\n<li><a href=\"http:\/\/sco.lt\/7q2g8f\" rel=\"nofollow\">The Ying Yang of Patient Advocate Groups and the Pharma Industry<\/a><\/li>\n<li><a href=\"http:\/\/sco.lt\/6qCqTR\" rel=\"nofollow\">Transparency is Good in Theory, But Not in Practice<\/a><\/li>\n<li><a href=\"http:\/\/sco.lt\/4sOB7J\" rel=\"nofollow\">#Pharma to Patient Advocacy Groups Questioning High Drug Prices: &#8220;Why Are You Doing This to Us?&#8221;<\/a><\/li>\n<\/ul>\n<p><\/b>    <\/p>\n<hr\/>\n<p>        Pharma Influencer Marketing<br \/>Patients are the Ultimate &#8220;Influencers&#8221;<\/p>\n<p>                        <img decoding=\"async\" vspace=\"0\" border=\"0\" hspace=\"0\" style=\"display: block; height: auto !important;\" width=\"450\" src=\"http:\/\/ec2-54-175-84-28.compute-1.amazonaws.com\/pharma-mkting.com\/wp-content\/uploads\/2017\/06\/InfluencerMarketing-for-Pharma.jpg\"\/>             <\/p>\n<p>[From www.wegohealth.com] As seen on Huffington Post, Influencer Marketing &#8220;is simply the action of promoting and selling products or services through people (influencers) who have the capacity to have an effect on the character of a brand.&#8221; That is, indeed, a very simplistic way of putting it. But, while the term &#8220;Influencer Marketing&#8221; is relatively new, the concept is not and has been evolving with the times.<\/p>\n<p>Patient Influencers do often play a role in the decision-making process of fellow patients. You might ask why someone would trust a fellow patient over a representative of the healthcare or pharmaceutical industry.<\/p>\n<p>Fast forward to today&#8217;s Influencers and you&#8217;ll see a much different face. Specifically, in healthcare, Influencers today are often &#8220;regular people.&#8221; They&#8217;re not celebrities in the traditional sense of the word; however, in some cases, they are considered rock stars within the healthcare community.<\/p>\n<p><a href=\"http:\/\/sco.lt\/75bRkf\">More here&#8230;<\/a><\/p>\n<p><b>Further Reading:<\/p>\n<ul>\n<li><a href=\"http:\/\/sco.lt\/7FpJwH\" rel=\"nofollow\">Another Buzzword: &#8220;Influencer Marketing.&#8221; Does It Pass the Authenticity Smell Test?<\/a><\/li>\n<li><a href=\"http:\/\/sco.lt\/7GZFmT\" rel=\"nofollow\">Five Rules of &#8220;Influencer Marketing&#8221; for Pharma<\/a><\/li>\n<li><a href=\"http:\/\/sco.lt\/5gv1BR\" rel=\"nofollow\">Digital Opinion Influencers\/Leaders: A Disruptive Trend in Physician Marketing?<\/a><\/li>\n<li><a href=\"http:\/\/sco.lt\/6qCqTR\" rel=\"nofollow\">Transparency is Good in Theory, But Not in Practice<\/a><\/li>\n<li><a href=\"http:\/\/sco.lt\/7kZg1J\" rel=\"nofollow\">Novartis Respects the Patient Perspective and Pays for It Too! But Is It Absolutely Transparent?<\/a><\/li>\n<li><a href=\"http:\/\/sco.lt\/9MVFYH\" rel=\"nofollow\">Survey: Should Pharma Hire Online &#8220;Patient Opinion Leaders&#8221;?<\/a><\/li>\n<\/ul>\n<p><\/b>    <\/p>\n<hr\/>\n<p>        <img loading=\"lazy\" decoding=\"async\" height=\"1\" vspace=\"0\" border=\"0\" hspace=\"0\" width=\"5\" class=\"SpacerImage\" src=\"http:\/\/ec2-54-175-84-28.compute-1.amazonaws.com\/pharma-mkting.com\/wp-content\/uploads\/2019\/02\/S.gif\"\/>                              <img decoding=\"async\" vspace=\"0\" border=\"0\" hspace=\"0\" style=\"display: block; height: auto !important;\" width=\"250\" src=\"http:\/\/ec2-54-175-84-28.compute-1.amazonaws.com\/pharma-mkting.com\/wp-content\/uploads\/2017\/06\/Cancer-Patient.jpg\"\/>                          Uninformed Cancer Patients: Patients Don&#8217;t Ask, Oncologists Don&#8217;t Tell<\/p>\n<p>[From www.pbs.org] At a time when expensive new cancer treatments are proliferating rapidly, patients such as Mead-e have more therapy choices than ever before. Yet patients like him are largely kept in the dark because their doctors either can&#8217;t or won&#8217;t communicate clearly. Many patients compound the problem by avoiding news they don&#8217;t want to hear.<\/p>\n<p>Surprisingly, huge numbers of cancer patients lack basic information, such as how long they can expect to live, whether their condition is curable or why they&#8217;re being prescribed chemotherapy or radiation, said Dr. Rab Razzak, director of outpatient palliative medicine at Johns Hopkins Medicine in Baltimore.<\/p>\n<p>The result: People with advanced cancer don&#8217;t know enough about their disease to make informed decisions about treatment or how they want to spend their remaining time.<\/p>\n<p>Even the oncologists who prescribe cancer treatment might not realize that so many of their patients are clueless about what&#8217;s going on. &#8220;I don&#8217;t think they recognize the enormity of it,&#8221; Razzak said.<\/p>\n<p>In a study published last year in the Journal of Clinical Oncology, only 5 percent of cancer patients with less than six months to live had an accurate understanding of their illness. Thirty-eight percent couldn&#8217;t remember ever talking to their doctor about their life expectancy.<\/p>\n<p><a href=\"http:\/\/sco.lt\/8rrlZZ\">More here&#8230;<\/a><\/p>\n<p><b>Further Reading:<\/b><\/p>\n<ul>\n<li>Doctors may not have enough information about oncology drugs to adequately inform patients: <a href=\"http:\/\/sco.lt\/95IUzZ\" rel=\"nofollow\">FDA Plans to Study If Physicians Are Mislead by Oncology Drug Marketing<\/a><\/li>\n<\/ul>\n","protected":false},"excerpt":{"rendered":"<p>Welcome to the June 23, 2017, issue of Pharma Industry News Update (aka PinUp). The relationship between the pharmaceutical industry and patients is often a riddle, wrapped in a mystery, inside an enigma. This is especially true of how the industry funds and benefits from so-called &#8216;patient advocacy groups and organized &#8216;patient activists.&#8217;<\/p>\n","protected":false},"author":2,"featured_media":2855,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[15],"tags":[],"topic":[],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v22.0 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>PinUp: A Pharma-Patient Advocacy Kickback Scheme &amp; Other Phama-Centric Uses of Patients, more... - Pharma Marketing Network<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/ec2-54-175-84-28.compute-1.amazonaws.com\/pharma-mkting.com\/articles\/news\/pinup063017\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"PinUp: A Pharma-Patient Advocacy Kickback Scheme &amp; Other Phama-Centric Uses of Patients, more... - Pharma Marketing Network\" \/>\n<meta property=\"og:description\" content=\"Welcome to the June 23, 2017, issue of Pharma Industry News Update (aka PinUp). The relationship between the pharmaceutical industry and patients is often a riddle, wrapped in a mystery, inside an enigma. This is especially true of how the industry funds and benefits from so-called &#039;patient advocacy groups and organized &#039;patient activists.&#039;\" \/>\n<meta property=\"og:url\" content=\"http:\/\/ec2-54-175-84-28.compute-1.amazonaws.com\/pharma-mkting.com\/articles\/news\/pinup063017\/\" \/>\n<meta property=\"og:site_name\" content=\"Pharma Marketing Network\" \/>\n<meta property=\"article:published_time\" content=\"2017-06-30T00:00:00+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2019-02-06T02:14:44+00:00\" \/>\n<meta property=\"og:image\" content=\"http:\/\/ec2-54-175-84-28.compute-1.amazonaws.com\/pharma-mkting.com\/wp-content\/uploads\/2017\/06\/Cancer-Patient.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"560\" \/>\n\t<meta property=\"og:image:height\" content=\"748\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Pharma Guy\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"Pharma Guy\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"4 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"http:\/\/ec2-54-175-84-28.compute-1.amazonaws.com\/pharma-mkting.com\/articles\/news\/pinup063017\/\",\"url\":\"http:\/\/ec2-54-175-84-28.compute-1.amazonaws.com\/pharma-mkting.com\/articles\/news\/pinup063017\/\",\"name\":\"PinUp: A Pharma-Patient Advocacy Kickback Scheme &amp; 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